WHY ADVOCACY IS SO IMPORTANT FOR WOMEN WITH FABRY

Hello[ variable name here],

If you are a woman with Fabry disease, you may be familiar with the misconceptions that have surrounded women in the community. Women with Fabry have been considered only carriers of the disease, or their symptoms have been downplayed as not as serious as symptoms in men. Fortunately, these misconceptions are being corrected, and we now know more about how Fabry affects women.

Now is the time to take control of your Fabry. Speak up and let your care team know how your Fabry is affecting you. It’s important for your healthcare provider to have a complete understanding of the signs and symptoms that you experience, so they can help you get the care you deserve.